PLEASE SAVE OYINKANSOLA ESTHER OYERANMI FROM TRAUMATIC PAINS OF CEREBRAL PALSY
Dear Families and Friends,
Over a decade ago (2010), Oyinkansola Esther OYERANMI was diagnosed with Spastic quadriparesis Cerebral Palsy
(SEE THE ATTACHED MEDICAL REPORT).
Electroencephalogram done on 23/08/2010 was abnormal and showed focal epilepsy with a probable left hemispheric focus. Had a cranial MRI done on 24/06/2013 which showed bilateral thamalic infarcts and cerebral atrophy secondary to hypoxic ischaemic injury. She has been on anti-epileptic drugs: oral Carbamazepine, Oral Sodium Valproate and Oral Levetiracetam etc. She has been regular with follow-up clinic visits and physiotherapy at the University Teaching Hospital, Ibadan, Nigeria. Although cerebral palsy is a permanent life-long condition, some of these signs of cerebral palsy can improve or worsen over time.
The word IMPROVE is the word this family is clinging onto!
We are using this medium to appeal for financial supports from well meaning Nigerians, global community and all lovers of humanity for my only child- Oyinkansola Esther Oyeranmi
(SEE THE ATTACHED PICTURES)
who has been suffering from traumatic complications of cerebral palsy for over a decade now. According to a UK based organization which specializes in cerebral palsy: Cerebral palsy is a neurological condition that affects a childs movement and co-ordination and can affect cognitive function. It is caused by damage to the brain, which often occurs before, during or soon after birth. The condition can be so severe that it can leave the individual with very little independent movement or function. On the other hand it can be mild perhaps causing clumsiness and weakness rather than obvious physical disability. No two individuals with cerebral palsy will be exactly the same and so will require different levels of support to manage day-to-day living. Their investigation also reveals that children with cerebral palsy often have other related conditions including: Epilepsy, Learning difficulties, incontinence, impaired vision and hearing, difficulties speaking and eating, delayed growth, curvature and so on.
With the above situations, it has become obvious that children with cerebral palsy are condemned to ugliest existence. Before life could be much bearable for them, they must be exposed to a complex care which covers both medical and social responsibilities. The good news is that new medical technologies are now available to assist in the management and drastic improvement of cerebral palsy patients. But the bad news is that, these new technologies are much more expensive thereby become unaffordable for poor families such as our own. One of such new medical technologies that we are seeking for Oyinkansola is autologous stem therapy with laser activation available at Dr Michael Webers medical facility in Germany.
Our tortuous journey of agony actually started on the 11th April, 2009 when Oyinkansola was delivered at Jericho Nursing home, Ibadan, Nigeria. After a prolonged labor, the doctors on duty (un)successfully delivered the baby through CS (operations). At this juncture that out of curiosity, the father dared to ask one of the doctors, if it will not be necessary to give the baby a thorough and special attention. This was born out of the fact after the delivery and minor cleansing; the baby was just wrapped with clothes and then put her on the bed with a very old lantern by her side. The response he got from the doctor was that the baby was 100% okay. So, they continued preparations towards her christening pending the release of Oyinkansola and her mum from the hospital.
However, we got the shock of his life when about 3 days later, the nurses (who we regarded as angels) on the afternoon shift called his attention to the malfunctioning of Oyinkansolas left arm. Meanwhile before this discovery, she had been crying incessantly and nobody could just proffer solution as the condition of the mother still remain critical at the period. And in order to save the child, the family was advised to take her to Oni Memorial Children Hospital, Ibadan, Nigeria with a referral note from the doctor on duty detailing her medical situations especially the left arm. Consequently, Oyinkansola was on second hospital admission within her first week on earth. During this period (which lasted for about 12 to 13 days) the family have great hope that the baby was getting the necessary medical attention needed for her full recovery. But this was not to be!
After about 13 days in Oni and sons children Hospital, Ring Road Ibadan, Nigeria Oynikansola was released to go home but was referred to the physiotherapy unit of the hospital for further medicare for the injured left arm. But what actually dampened the familys spirit and almost torn oyinkansolas mother into pieces was the horrible discovery at about fourth visit to Oni and Sons hospital for a medical check-up for the baby. The physiotherapist in the hospital ordered for X-ray of the left arm which they did and took back to the hospital. After about a week, when the baby was taken back to the hospital for dressing of the wounds inflicted on her during the earlier treatment, one of those at the physiotherapy unit who just ran into my wife then informed her that they have been looking for her concerning the babys x-ray. It must be stated here, that it even took sorrowful tears from Oyinkansolas mum before one of the so-called senior doctors in the hospital could accept to study the X-ray. After so much tears and pleadings, the doctor studied the X-ray and made a pathetic discovery that our babys left arm had been infected by a deadly virus after so much pains and wounds she suffered for more than two weeks.
As a result of this ugly development, the entire family was left broken-hearted, helpless and down casted. This was not only because they lack enough financial strength to really take care of her but because their source of joy was withering away right before their eyes due to the criminal negligence on part of some of the so-called care givers. So, it was in order to save the family from further distress and especially to rescue the Oyinkansola from the trauma of a permanent disability that the parents decided to take her to the University College Hospital, Ibadan, where she was diagnosed of cerebral palsy in 2010. Ever since, Oyinkansola has been moving in and out of hospitals and the family has been undergoing this trauma for over a decade now.
It must be mentioned here that absence of modern medical facilities and expertise in Nigeria to assist Oyinkansola are responsible for slow progress in her journey towards recovery so far. For example, in Nigeria, as I am composing this message there is no single specialist who can handle her type of cerebral palsy in Nigeria. It should therefore not be surprising to anyone that, Oyinkansola is currently 11 years and 3 months, yet, she cannot sit or stand independently and cant speak despite her frequency to UCH over the years. And they kept administering same drugs, same exercises and always saying things will improve. It is this scenario that necessitated the proposed medical trip to Germany.
What gladdens our hearts is that Oyinkansola Oyeranmis case is not hopeless as attested to by many medical experts and she can still recover most of her lost potentials through this treatment in Germany. This foreign medical trip for their only child is not to seek a total cure or a permanent solution to this debilitating medical condition. It is rather a leap of faith to seek ways to improve her situation, reduce her enduring pains and make life more meaningful for her. If Oyinkansolas life improves, this will definitely uplift the emotional and psychological status of the entire family. As we have observed over the years and as shown by results of several tests she has undergone (eg MRI), Oyinkansola is not brain dead and she has been responding well to treatments and drugs being administered on her over the years. For examples, for over 3 years or more seizure has stopped, body pains reduced remarkably, improved non-verbal communication, responding more meaningfully to her environment and relating well with people. All these positive attributes aided her acceptance by the German Doctor in order to be able to benefit from this advanced therapy which can successfully treat her spasticity and bring about general improvement.
After months of exchanging of phone communications and emails between the father and the Medical Doctor, Oyinkansola was invited by Dr Michael Weber to his medical facility in Germany through an invitation letter dated 30/04/2020 (SEE THE ATTACHED LETTER). She is expected to receive autologous stem therapy with laser activation. This has proven to be very useful in the treatment of many musculoskeletal disorders and has played great role in the treatment of cerebral palsy without any adverse effects.
This was also supported by Oyinkansolas medical Consultant at the University College Hospital, Ibadan, Nigeria.
The total amount required is 20,000 Euros= #8,376,127.08 (Eight Million, three hundred and seventy six thousand, One hundred and twenty seven Naira and eight kobo),which covers cost of treatment, flight and accommodation in Germany
My dear lovers of humanity, I need to mention here that Oyinkansola our family could not afford this huge amount required for this life transforming medical trip to Germany due to our current extreme financial difficulties. After due consultations, the family decided to launch an public appeal after all efforts to raise the funds have failed woefully towards saving the life of our only child.
The family would like to THANK YOU for taking the time to read our story, and if you are able to donate anything to assist us even in a small way we would be forever grateful. This family does not ask for help, nor accept it easily, but this time we have no choice, we desperately need help! As Oyinkansolas father, I am doing this on behalf of my family to try raise funds to rescue our ONLY CHILD-OYINKANSOLA ESTHER OYERANMI FROM TRAUMATIC PAINS OF CEREBRAL PALSY AND RISKS OF PERMANENT DEFORMITY.
Please donate directly into the dedicated account for this course: Account no : 3155580579,Account Name: Oyinkansola Esther Oyeranmi, First Bank, Mokola Branch, Ibadan, Nigeria.
Thank You and God bless you all !!!
Please contact Dr Soji Oyeranmi, +2348033513896 or +2348033638299 for more information.
